Episode 59

full
Published on:

11th Sep 2024

Amy, shares her health conditions, including small fiber neuropathy, mold toxicity, MCAS, EDS, and POTS.

Linda Elsegood engages in a conversation with Amy, who shares her journey with multiple health conditions, including small fiber neuropathy, mold toxicity, MCAS (mast cell activation syndrome), EDS (Ehlers-Danlos syndrome), and POTS (postural orthostatic tachycardia syndrome).

Amy recalls that she has been experiencing symptoms her whole life, such as hives, reactions to medication, and odd food reactions. She describes having weird physical quirks that were dismissed as "just an Amy thing." For instance, she would feel hot in her head after eating peanuts or feel dizzy. Despite undergoing allergy testing, her results were negative, and doctors attributed her symptoms to being "sensitive."

However, after contracting mono and strep in college, Amy's symptoms became more debilitating. She felt extremely tired all the time, and nothing seemed to help. She experienced GI (gastrointestinal) problems, brain fog, and heat intolerance. Her symptoms continued to worsen, and she had episodes every few months where she felt like she was dying. She would have trouble eating, and it felt like a brick was in her stomach.

Despite seeking help from countless doctors, none could diagnose her condition or connect all her symptoms. Her doctors would refer her to specialists, such as gastroenterologists, allergists, and pulmonologists, but it didn't help. They would attribute her symptoms to panic attacks, stress, or other unrelated conditions. They even removed her gallbladder, but it didn't alleviate her symptoms.

Amy recalls that her body kept reacting to everything, and she could only eat rice for a while. After two back-to-back pregnancies, her body could no longer tolerate certain foods. She experienced anaphylaxis, which she knew was not a panic attack, and her face swelled up, and her tongue became tingly. Her body began reacting to everything, and she now only eats six foods.

In conclusion, Amy's story highlights the challenges of living with multiple health conditions and the difficulties of finding a diagnosis and proper treatment. Her experiences could help others who may be going through the same struggles.

#LDN #Low Dose Naltrexone

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About the Podcast

The LDN Radio Show About Low Dose Naltrexone
Listen to LDN Prescribers, Researchers, Pharmacists from around the world! This is your chance to ask your questions to the experts, please email linda.ldnrt@gmail.com if you have any questions.
Listen to LDN Prescribers, Researchers, Pharmacists from around the world discuss Low Dose Naltrexone.

This is your chance to ask your questions to the experts, please email linda@ldnrt.org with your questions.

The LDN Radio Show is FREE if you would like to make a donation please visit www.ldnresearchtrust.org/donate

About your host

Profile picture for Linda Elsegood

Linda Elsegood

Linda is the founder of the LDN Research Trust established in 2004. She runs the trust raising awareness of LDN, answering with the help of the medical adviser’s, questions from users and the medical profession, helping people around the world find an LDN prescribing doctor. Linda has interviewed so far over 320 LDN Prescribing Doctors, Scientists and Users. Linda has MS and has been taking LDN with great success for MS over the last 10 years.