Jenn's Story of Managing MCAS, EDS and POTS
Jenn from Canada shared her experience with mast cell activation syndrome (MCAS) and Ehlers-Danlos syndrome (EDS). She described experiencing symptoms of disautonomia and dislocations from a young age. Her health challenges worsened during her teen years with symptoms such as mold exposure, recurrent hospitalizations for mystery illnesses, and autoimmune-related issues. It wasn't until two years ago that she was diagnosed with MCAS after discovering hidden mold in her home. After consulting with an allergist and starting on a personalized treatment cocktail, including low-dose naltrexone (LDN), she noticed improvements in her chronic headaches, sleep, and other symptoms. The LDN helped alleviate her symptoms more than she expected and significantly improved her quality of life.